The Patient Journey

Meet Mimi & Brady Chan

Participating in a rare disease trial can be challenging for both the patient and their caregivers. Mimi Chan, a PPD employee, has first-hand experience in this area with her son, Brady, who was diagnosed with spinal muscular atrophy (SMA) type II when he was just 18-months old.

Mimi spoke with Dr. Timothy Miller, head of Rare Disease & Pediatrics at PPD, about her journey with Brady through enrollment in an SMA trial.

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In this interactive brochure you'll have a chance to walk through Mimi and Brady's experience from diagnosis through trial participation, and learn about some of the recent advancements being incorporated into clinical trials to improve participation.

Click through to their journey >

Mimi and Brady's Journey

Finding A Diagnosis

Mimi noticed Brady was not crawling or kneeling as a baby.

After Brady's diagnosis with SMA type II at 18-months old, Mimi began the long process of research and working through support groups until she learned about a trial that was showing progress for patients with SMA.

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Mimi and Brady's Journey

Enrolling In A Clinical Trial

Brady enrolled in an SMA trial in 2015, but the site was out of state.

This presented real challenges for the family, with Mimi having to take a lot of time off work to travel for days at a time for site visits.

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Mimi and Brady's Journey

Working With Advocacy Groups

Mimi looked to advocacy groups for guidance on care for Brady and connections to specialists in SMA.

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Mimi and Brady's Journey

Living With SMA

Brady continues his fight with SMA by participating in clinical trials.

Dr. Miller touches on some of the recent advances, such as telemedicine and eConsent, that will make these trials less burdensome for people like Mimi and Brady.

Click ahead to learn about our solutions >